Hello everybody, and welcome to today’s Charity Feature!
Today, we’ll be talking about a small charity called Tiny Tickers.
Tiny Tickers is a small charity who has been around since 1999 by a world-renowned fetal cardiologist, Dr Helena Gardiner.
She founded this charity when she realised how many of the babies she cared for could’ve been helped earlier.
“We want to increase early detection rates of cardiac conditions because we know that spotting a defect early can improve a baby’s chances of survival and long-term quality of life. Around 6,000 babies are born with a serious heart defect in the UK each year, and around 1,000 of these newborns head home with no one realising their lives are in danger. We are changing that.”
Test for Tommy
Tiny Tickers national campaign
Test for Tommy is their national campaign which launched on 6th November. Named after — and in loving memory of — Tommy.
This campaign is to further improve early detection rates of congenital heart disease by getting pulse oximetry machines in maternity wards across the UK.
Did you know pulse oximetry testing is not a mandatory newborn test within all NHS hospitals, despite congenital heart disease being one of the biggest killers of infants in the UK?
Neither did I.
And that’s where Test for Tommy comes in.
“we need your help to achieve our ambitions of 330 machines being placed by 2021.”
This contains distressing information about a newborn losing their life.
Tommy was born on 22nd January 2015. Despite his parents having an extra scan at 32 weeks, not a single abnormality was picked up on.
On 2nd February, in the evening when it was his bedtime, Tommy passed away.
“Tommy’s post-mortem showed he had a congenital heart defect called, Transposition of the Great Arteries (TGA). TGA can be corrected with surgery – surgery that has a 99% success rate if only his heart condition had been detected.”
Tommy’s family firmly believe that if he had a pulse oximetry test soon after he was born, he would still be with them today.
Tiny Tickers has managed to place 70 machines across the UK and they’re still counting. With a goal of 330 machines by 2021.
Each machine costs around £725 to buy and place in a hospital. Which is why it is important that people are aware of the important work they do and can support in any way possible.
You can read more about Tommy’s story here.
Should you be interested in seeing a pulse oximetry test, you can see a video from their youtube channel.
How we can help
Tiny Tickers funding comes from a handful of trusts and foundations. Nearly half of their funding comes from fundraisers themselves. Be it through donations, or many of the incredible ways they raise money.
“We cannot do, what we do, without you.”
This is a charity I firmly believe needs to be made more aware within our country. There is nothing more heartbreaking than losing a baby. Especially when it could’ve easily been prevented.
Are you a charity, or have a charity you’d like to be shown on Surviving Millennial? (Free of charge) Then contact us through our “Contact/PR” page!
Until next time,
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